Wednesday, January 4, 2012

Welcome!

    Having cerebral palsy is quite the challenge.  It is a round-the-clock job that requires dedication and a great deal of hard work.  This can get very tiring and frustrating as it sometimes feels like you never get a break.  I, for one, can attest to this.  My name is Jason Carr and I was born with cerebral palsy.  During birth, the umbilical cord became wrapped around my neck and I was unable to breathe.  My brain did not get enough oxygen and the doctors had to intibate me.  As a result of this, when my brain sends messages to the rest of my body, it sometimes misfires and causes my body to do things that I do not want it to do.  As you can probably tell, this can, and does, get very frustrating.  It takes a large amount of patience and perseverance to get through each day...some of which can be quite overwhelming!

    As I continue to age and mature, I try to get better at living with my disability.  I find new ways to deal with the things that came up as obstacles the day before.  I have explored many different options throughout my lifetime with the hope of making my life more easy and enjoyable.  I will discuss these options in later posts, but some of them include a baclofen pump, oral medication, hyperbaric oxygen treatments, and tons of different therapies.  Some of these have worked, while others have not.  This is information that, although each case is unique, may save you time and money in the long run.

    I can honestly say that two of the hardest things about having a disability are dating and a lack of good communication skills.  These are also subjects that I will devote entire blog posts to as I think they are important.  There are so many things that people take for granted and who do not realize that not everyone has.  I do not see myself as being “disabled”, so it is hard to understand why others look at me differently.  As I grow older, however, I see that people are starting to respect me more and have a greater appreciation for what I have to go through.  This respect, however, does not come without hard work on my part.  I have had to become more outgoing and better able to stick up for myself in order to gain this respect.

    My disability has also brought me blessings as well in the midst of all my struggles.  For example, I have been able to travel around Europe to countries such as Italy, France, and Hungary.  I have met very famous people such as the Pope, the Queen of Spain, and Kareem Abdul Jabar.  I also have succeeded in my goal of graduating from a college away from home.  This was very important to me because I want to be as independent as possible.  I was able to live in a dorm room, on my own, and, by doing this, I proved to myself that, once I find a job, I can move out from my parents house and live on my own.

    Now, I am in the midst of a job search, which I have found is not easy at all.  It is difficult for people without a disability to find a job, let alone a person that has one.  I have no doubt, however, that if I continue to pursue it, I will find one...hopefully in the near future.  Right now, I am looking into a job in college administration or with the federal government.  I would love to work in Washington DC or on a college campus with disabled students.

    Well, I truly hope you enjoyed the introduction to me and my blog and that this blog provides those that read it with inspiration, information, and knowledge that they did not already have.  I also want my readers to come away from reading my posts with the feeling that they always have the ability to accomplish anything, they just have to keep at it!

2 comments:

  1. Jason, I have always looked at you as a very strong person. Anyone that does not have a disability has no idea what it is like. Even as a young boy I always thought your personality would get you through a lot. I think it probably has. Having been diagnosed myself with MS nearly 13 years ago I do know a little bit of what it's like. Not to your extent but enough to know. People stare, they want to ask questions but you can just tell they don't know how. With MS the nerves misfire and send the wrong signal to the brain due to lesions on different parts of the brain. I have also been on baclofen in the past. I was on MS drugs for years until the side effects became too much for me. It's the old adage which is worse the disease or the cure. For me it was the cure, or more accurately I should say to slow down the progression since there is no cure for MS. I have always thought of you in a very respectful way and I've told said you hold a very special place in my heart. I am so proud of what you have accomplished, graduating college and being able to deal with all of your obstacles. This is something you've had to do your entire life. I am so happy to have had you in my in kindergarten class and being able to get reacquainted with you after so many years. You are truly an inspiration to so many people, me included. Thank you for your strength and your willingness to share your story!

    Nancy Peterson

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  2. I am so thankful to have you as my friend. I can't wait to hear what comes next in your life and I know that you will accomplish all of your dreams. It's exciting to see that you decided to start your blog, and I'm very interested in what will come out of it. All you have to do is apply some of that hard work and patience into telling your story and I'm sure you will find that there are a lot of listening ears out there that are anxious to hear what you have to say. Keep up the pursuit my friend. You've inspired me to do the same.

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